Sunday, October 14, 2012

what is adenomyosis

when i made this blog two years ago, i intended for it to be my venue to rant about my condition called "adenomyosis." since then, i've never really updated this blog. one reason is at one point i made the decision not to talk so much about my uterus. i felt that talking about my beautiful uterus is equivalent to me letting the condition take control over my life. but today, i'm reminded of the other reason why i supposedly started this blog: to help fellow sufferers. so, i went through the few posts i've written and realized that i've never fully explained what adenomyosis is.

WARNING:
please read this post with caution. i'm not a medical doctor. i do not pretend to have a full grasp of the condition that i have. what you will read here are FACTS OF MY CASE.
over the years i've learned not to jump to conclusions, and to take each information i come across the net with a lot of skepticism. that each information is unique to an individual suffering the same case. though each case is unique, it is those cases of other women that helped me cope with my condition. so, hopefully - my case could help another suffering woman out there. again, i can't reiterate enough to read with caution and remember that it is MY case. yours might different from mine.

my case started with this piece of report: well, i've had this condition since i was 12 years old. i just wasn't diagnosed with it yet as i didn't seek further medical advice until i was 23 - old enough to understand the processes i had to go through.
i was told that i had a thickened endometrium at .94 cm or (9.4 mm).

The endometrium is the inner lining of the uterus. It is where a fertilized egg attaches to during pregnancy. Thickness of the endometrium usually varies during the woman's menstrual cycle. When the woman doesn't get pregnant, this lining is shed off and should reduce to 2 to 3 mm thick.
My scan reveals that even at Day 10 of my period, my endometrium is still at 9.4 mm thick. A thickened endometrium is one symptom of adenomyosis.
According to yahoo health, adenomyosis is a condition that involves movement (or encroachment) of endometrial tissues, which normally lines the uterus, INTO the muscles of the uterus. It is for this reason that uterine walls are thickened and can cause heavy or longer-than usual bleeding. It can also cause pain during the menstrual cycle or copulation.

My 2007 UTZ Results
DIAGNOSIS;
  • normal-sized globular retroverted uterus with thick endometrium as describe, cannot rule out endometrial pathology.
  • posterior wall adenomyosis considered with adenomyoma and endometrial encroachment noted
  • both ovaries are normal.
My 2009 UTZ Results
DIAGNOSIS;
  • slightly enlarged, retroverted and globular uterus
  • posterior adenomyosis / adenomyoma, maintained; the adenomyoma shows increasing size
  • thick endometrium with a nons-specific sonographic appearance
  • unremarkable ovaries
  • nabothian cysts

In October 2010, i underwent a DnC (dilation and curettage procedure ('raspa')) to rule out "endometrial hyperplasia" - a topic i'll probably discuss next.

In January 2011, i had the worst pain symptoms ever that i rushed to velez hospital at the ungodly hour of 2 A.M.

In May 2011, i decided to give up pharmacology. I stopped taking oral contraceptive pills or depo provera shots just to control my heavy bleeding.

This year, I haven't had my yearly ultrasound. I don't know when my period comes or when it goes, but I feel much better now. It's mid October and I've only used up 2 of my 6 sick leave credits. It's a great improvement because in the past years, I would have used up and more days because my bleeding was too heavy for me to report to work.

11 comments:

  1. Ok, wondering how you CAN give up pharmacology without bleeding to death. I did that and it landed me in the ER needing a transfusion!

    ReplyDelete
    Replies
    1. thanks for dropping by..

      hmmm, i dont know the answer to your question except that probably our case is different. prior to 2011 i was religious about taking iron supplements (once or twice daily) for several years, intermittent intake of evening prim rose oil, inconsistent intake of raspberry leaf tea. the DNC in 2010, and the 2-year intake of OCPs probably helped. i'd say the OCPs helped regulate my period, but i later justified that 5 days of hellish ordeal wasn't worth it. that's when i stopped taking OCPs. with a regular period, thickness of my endometrium began to decrease, too.

      Delete
    2. i probably was able to do it because after getting off the pill, my period stopped to being heavy. i was pain-free when i do bleed, which can lasts 5 days or two weeks or more (there's really no pattern). after episode of this, i would not bleed for 1 to 3 months (just spotting in between). i took these as me being 'condition-free'. led a much normal life. this month though, i had irregular periods again. as my 2010 biopsy diagnosed me as having hyperplasia, i try to have regular utz. this month, my results show that i again have a 1.7 cm endometrium and has developed some cysts in my right ovary. doc advised me to do another DNC just to monitor the hyperplasia. i haven't done anything about it. right now, am not sure if going off the pill then was a right decision or if i have compromised my health, hehe..

      Delete
  2. hi!

    i was diagnosed with the same condition (Adenomyosis/Retroverted Uterus) and battling with excruciating pain during my periods (3 days minimum in a period).

    my OB-Gyne suggested D&C which i think will not remove the problem. the other doc suggested Hysterectomy. this month, i had spotting for 12 days, not the usual 7 days with 3 days heavy period.

    i also observed that since i was diagnosed with the said condition i always have constipation. i feel bloated all the time and the feeling of labor during childbirth.

    to date, am still contemplating on the other options the docs suggested since Hysterectomy is quite costly.

    ReplyDelete
    Replies
    1. hi!!

      thanks for dropping by!!!

      right, the DnC is not a cure, it offers temporary relief from heavy bleeding as most or all of your unshed lining will be scraped off during the procedure. it is also a diagnostic procedure to check if there are any irregularities, as in my case, endometrial scrapings were sent for biopsy to check for hyperplasia.

      as for constipation - side effects of iron supplements? - i don't know really. bloating and childbirth pains, i USED TO have that too. luckily for me, i've been pain free for more than two years (i think) and i can only attribute it to minimizing my red meats and avoiding 'wheat'..

      hysterectomy? if you're done with having kids, then it can be option. but you're right, it can be expensive.

      have you considered changing your diet? it's hard, but it's worth a try. who knows?

      good luck in making your decision!! listen to your body more than your doctor, hehe...

      Delete
  3. This information will help those suffering from Adenomyosis and Endometriosis, I was also a victim. I am excited to share this testimony, I was 3 years ago diagnosed of Adenomyosis and complicated Endometriosis. My medical condition was heart broken because it was causing my menstrual cramps,bloating before menstrual periods, lower abdominal pressure which result to heavy periods. I was subjected to different medications by my doctor for treatment such as Coenzyme Q10,ibuprofen, Danazol and many more. Despite my visit to several doctors my health wasn't getting better, all they could say was surgery. At the verge of giving up, I went to the internet to search for a treatment at least. But I found a cure instead. In the internet, I read a testimony of a lady who had Adenomyosis and Fibroid. She shared an e-mail address of the Doctor. Luckily everything seemed to be okay after I took the Herbal Medicine. I wish I could say that’s the end of it because I haven't had any symptoms since then.
    Do not expose yourself to more danger, use a herbal remedy that is safe and effective. If interested contact him: ronniemd70@gmail.com to find out more information and treatment.

    ReplyDelete
  4. Thank you very much Ronnie, for this wonderful opportunity in sharing my wonderful experience.
    I suffered from severe debilitating pelvic pain for over 9 years. It was thought that I had endometriosis but I had really adenomyosis. It was diagnosed after my hysterectomy. I also had multiple fibroids.
    I have tried a lot of miracle supplements in the past, almost always experiencing some diverse side effect during the procedure. I am glad to say that I experienced no such effects during my stint with zomo product. Since I came across your product. Still, I did truly feel the impact of your wonderful herbal product. I felt a powerful spike in my energy levels during the first month of taken your herbal medicine, and a slight hike in sensitivity during the second month and beyond. I feel that this aspect of the treatment is most important, because a person may also gain a little insight into their overall health, now the pain is gone, also I started to change my diet, I eat more fish and fruits and vegetables. In March, I got another ultrasound and everything is OK now, hope it can help ladies in the same or similar situation. Here is his email: ronniemd70@gmail.com

    ReplyDelete
  5. With the growing age there might be some problems like Fibroids & Adenomyosis can initiate into the body. Normally it occurs in females vaginal parts. swelling & pain in lower abdominal is symptom for it. It should be treated as soon as it's possible. There are many expert doctors for Adenomyosis Treatment. Those can help you to cure it with or without surgery according to the stage.

    ReplyDelete
  6. AdenomyosisTreatment is a condition in which the tissue that lines the uterus grows into the muscular wall of the uterus. This can cause heavy and painful periods, as well as pelvic pain and discomfort. There are several treatment options for adenomyosis, including: Pain relief medications: Over-the-counter pain relief medications, such as ibuprofen or acetaminophen, can help relieve pain and discomfort associated with adenomyosis. Hormonal therapy: Hormonal therapy can help reduce the symptoms of adenomyosis by regulating hormone levels. This can include birth control pills, hormonal IUDs, or hormonal injections. Endometrial ablation: Endometrial ablation is a minimally invasive procedure that involves the removal of the lining of the uterus. This can help reduce heavy bleeding and alleviate pain associated with adenomyosis.

    ReplyDelete
  7. Informative read! 'What is Adenomyosis' provides a clear understanding of this condition. Grateful for the insights on symptoms and potential treatment options. Knowledge is power, and this blog is a valuable resource for anyone seeking information on adenomyosis. 👏 #AdenomyosisAwareness #HealthEducation

    ReplyDelete
  8. I just saw your blog entry regarding Adenomyosis Embolization and couldn't resist but leave a remark. First and foremost, congratulations you shedding light on a problem that has received little attention. Your post is a game changer for anyone dealing with adenomyosis or looking to better understand it.

    ReplyDelete

hi! thanks for reading. do you have or know anyone with adenomyosis? perhaps we could share experiences. would love to hear yours and possibly offer support.